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“You either walk inside your story and own it or

you stand outside your story and hustle for your worthiness”.

Brene Brown

95 Things NOT To Say To Someone With EDS

95 Things NOT To Say To Someone With EDS

I bet if you have a chronic illness, especially one as misunderstood as Ehlers Danlos syndrome (EDS), someone somewhere has given you a piece of well meaning advice that hasn't quite landed. As you will see, even from well trusted medical professionals. Unless you...

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EDS And CMT One In Twelve Million

EDS And CMT One In Twelve Million

Does it make me special? One in 12 Million... the odds of having both hypermobile Ehlers-Danlos syndrome (EDS) and Charcot Marie Tooth Disease (CMT), based on current prevalence! Some days it feels pretty special, let me tell you why. I’m not going to dwell on the...

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